May 2013 Evan was diagnosed with EoE, along with his FPIES and other medical issues. We've been so thankful that he is able to receive his nutrition without tube-feeding, and hope he never needs this. So far, he's been tolerating the unflavored EleCare well, as long as he can drink it with a slow flow nipple, and he's able to eat his 6 safe foods in different ways, although he usually still prefers his food pureed and some freeze-dried, and he loves his blueberries whole and fresh. He now sleeps through some nights, but other nights he frequently cries because of stomach pain, itchy eczema, trouble breathing, or cries for a bottle of EleCare, and frequently has swelling in the face.
Here are a few links with more information on EoE:
Joshua's Battle with EE
Alysa's EOS Journey
National EOS Awareness Week from ausEE
http://www.aaaai.org/conditions-and-treatments/related-conditions/eosinophilic-esophagitis.aspx
Eosinophilic Esophagitis (Matthew Greenhawt, MD)What are the most relevant research findings on EoE
All about EoE: A guide to successfully managing Eosinophilic Esophagitis
Sending your Child to School with an Eosinophilic Disorder
Here are a few links with more information on EoE:
Joshua's Battle with EE
Alysa's EOS Journey
National EOS Awareness Week from ausEE
http://www.aaaai.org/conditions-and-treatments/related-conditions/eosinophilic-esophagitis.aspx
Eosinophilic Esophagitis (Matthew Greenhawt, MD)What are the most relevant research findings on EoE
All about EoE: A guide to successfully managing Eosinophilic Esophagitis
Sending your Child to School with an Eosinophilic Disorder