So we are trialing coconut with Evan right now. Very versatile as fingerfood, a drink, oil, butter, and it has iron, which Evan is lacking... Baked him some sorghum/oat flour cookies with blueberries and coconut virgin oil this week. He liked them the first few times, and then refused to eat them. Wondering if he had abdominal pain and knew it was from that? He broke out in a bad FPIES type rash on his hands, arms, feet, legs, and cheeks, and had trouble breathing last night and this night. We've been giving him Benadryl and Ventolin. Today I cut open a fresh coconut and shaved off some for him as finger food. He LOVED it. So far no vomiting, but the itchy rash continues, and he is having difficulty breathing again, and has been extremely restless this night with crying. Not concluding that it is the coconut yet, but it is possible. I so wish there was another way of finding new foods that were safe for him, than the slow process of trialing every food, and watching him react to most of them!
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Along with his many symptoms due to FPIES, Evan recently had severe IgE type reactions to eggs and milk with big, itchy hives over whole body, trouble breathing, lethargy, and swelling in face, and required epinephrine. With the milk, he also had profuse vomiting. Along with his peanut allergy, there are at least three foods he needs the epi-pen for, if he ingested any amount. He seems to have build up a much stronger reaction to milk and eggs in the past year, so we are increasing the number of epi-pens on hand from 2 to 4, after having it confirmed through prickle testing this week. We do hope he will grow out of some of his allergies!
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About meI am the mom of two precious boys, who fill my days with much life and laughter. Archives
April 2021
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