Looks like we can call proso millet flour from Big River Grains a pass for Evan!!! To give him some variety, we ordered 12 bags of puffed millet from a different company, and he LOVES them, but over the weekend he developed a severe itchy rash, swelling in face, trouble breathing, and acid smelling, green, mucous-y diarrhea after eating them several times : ( Most likely it is due to cross-contamination during production or because it might be a different kind of millet more similar to sorghum, which he reacts to. Still waiting to receive an answer from the company. I guess we will be eating the puffed millet for breakfast when Evan is not watching, since he will cry to have some too. Once he has a safe oil, I will try to make him some homemade puffed millet. Maybe the next food trial should be grape, then grape oil... although I would love to find a food for him that is high in iron, which he is lacking. Such a big decision and hard choice on what to trial next, once he heals from this reaction!
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Baked more mini-muffins for Evan today and made a pancake for him for supper with the same dough mix (see under 'recipes' for details). Due to the time he needed to heal from EGID, it's been so long since we trialed a food in form of flour. He did not want to eat the pancake, and only picked out the blueberries in it. With a miniature cookie cutter, I decided to cut out little stars for him, as many as I could. He ate it all, even the left-over from the cut-out, and was happily humming 'Jesus loves Me' and moving to the beat, while eating and saying "it's good". This made my week and melts my heart! Josiah loves everything I make for Evan and the two brothers always have big smiles on their face when they can eat a food together that's safe for both. I've heard them call those moments 'a party' : ) Such sweet boys! Josiah (now 4 1/2) still has some FPIES symptoms, we think to fish and mushroom and possibly eggs and other foods, and over time build up a severe anaphylactic/IgE reaction to cats, and IgE to egg yolk. No wonder he never wanted to eat scrambled eggs. Hence, we had to increase the number of EpiPens we bring along everywhere with our boys from 2 to 4, and always carry Benadryl and Ventolin with both of them as well. We are trialing millet with Evan, 2 1/2 yrs old now. He reacted to all grains we've tried so far, including sorghum. The proso millet is in the same sub-family but in a different group of food 'tribe'. It is the only grain he had no reaction to with patch testing, but he broke out in a severe itchy rash and green, acid smelling, mucuosy diarrhea, cried more at night... The symptoms could also be due to some cross-contamination when we were out with him, although we rarely attend any social events with him anymore when food is involved, and we don't eat out. Gave him a few days break and continuing the trial. Not calling it a fail yet. Will bake more mini-muffins with the millet flour, which he LOVES.
Also check under "Evan's Story" for a short update posted this month. |
About meI am the mom of two precious boys, who fill my days with much life and laughter. Archives
April 2021
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