March 4: Spent hours and hours and hours on the phone with our insurance during the past 7 days, including half of Monday, to get Evan's next 3-month shipment of EleCare nutrition approved, and I have not gotten anywhere! For now, they have it listed as a failed claim! If you know my mischievous boys that can't be left out of sight, you know why I totally dislike being on the phone for even a few minutes! Having to spend hours on the phone makes our life crazy!
February 28: With it being rare disease day, I wanted to post something in regard to our FPIES/EoE life: Every three months I need to order the next 3 mo shipment of EleCare for Evan. It is always a bit of an ordeal every time, with insurance going back and forth on whether they will provide it or not, and how many cans, and requesting other info from the pediatrician... It has taken me 30+ hours on the phone over a period of 4+ weeks for one order to be finalized! Very grateful that insurance payed eventually every time so far! A week ago I called to order the next shipment, and had to make several calls since then. My order was labeled as claim failed, but later was tolled that 'yes, it will be shipped'. The insurance plan we had in the past is no longer offered, and with the new plan that started this year we have to pay much more out of pocket, hence we are anxious to find out how much we end up having to pay ourselves. Praying and hoping that our insurance will indeed continue providing the EleCare for Evan! We will update once we know...