Sharing an update on Evan and our current food trial: After failing a list of meats, we decided to take a chance, pray hard, and trial fish with him. He’s had 6 days of wild coho salmon with no acute reaction. No swelling in the face, and no trouble breathing! He loves it so much, he always asks for seconds, even with nothing added except a little salt. (I even cook it with water, since we have no safe oil for him yet.) I am in tears of relief and tears of joy that this might be his first safe source of protein and heme iron! Despite being on 30-40 ounces of EleCare/day, he's been low on iron for a long time, so that is huge! I can’t even express in words how much this means to us! With the unpredictability of FPIES and chances of chronic reactions, we trial at least two or more weeks to call it a pass, but we are very hopeful! Thank you Lord and thank you to all who are praying!
Update Nov. 31: Evan did not show any noticeable reaction to wild Coho Salmon, so we are calling it a pass! We 've also given him wild cod a few times, and he broke out in terrible itchy rash, but we can't fully exclude cross-contamination.
Update Nov. 31: Evan did not show any noticeable reaction to wild Coho Salmon, so we are calling it a pass! We 've also given him wild cod a few times, and he broke out in terrible itchy rash, but we can't fully exclude cross-contamination.