Evan had a night this week with rather severe reaction to wild Alaskan halibut (fish), including hives, swelling in face, vomiting, and severe stomach pain, diarrhea, cough... The first 2 hours I was up with him I kept contemplating whether I need to give the EpiPen, but then he got better with other antihistamine. I so dislike those moments, when even as a nurse, I don't know if I am doing all I need for my son. Those kind of nights are more frequent than I wish, and make me even more thankful for EleCare. Evan, seeing my tears after I got the positive news from insurance, asked me: "Mommy, why are you happy and crying?" How do you explain tears of relief to a 3 yr old... The boys and I ended up doing a 'good news celebration dance' together!
Update on Evan's EleCare and insurance: After more than 7 weeks of ordering the next 3 month supply, and more countless hours on the phone this week, I finally got the word that our insurance's claim devision changed the status for it from denied to covered, and we also now don't have to reimburse them for the cost of the previous shipment they sent!!! PTL! That is all I wanted for Christmas! If all goes as I was told on the phone, we should be receiving it in 10-14 days! Thank you so very, very much to all of you who were praying!
Evan had a night this week with rather severe reaction to wild Alaskan halibut (fish), including hives, swelling in face, vomiting, and severe stomach pain, diarrhea, cough... The first 2 hours I was up with him I kept contemplating whether I need to give the EpiPen, but then he got better with other antihistamine. I so dislike those moments, when even as a nurse, I don't know if I am doing all I need for my son. Those kind of nights are more frequent than I wish, and make me even more thankful for EleCare. Evan, seeing my tears after I got the positive news from insurance, asked me: "Mommy, why are you happy and crying?" How do you explain tears of relief to a 3 yr old... The boys and I ended up doing a 'good news celebration dance' together!
2 Comments
Brittany
6/5/2015 01:41:16 pm
Hello! I came across your wonderful website when doing research for my newly diagnosed daughter. I was wondering if Evan's hives are from an IgE response or from his FPIES? My daughter was, like I said above, just diagnosed with FPIES and she has been having chronic hives for the past 3 months. They seem to be getting worse but all the doctors just keep telling us that it is fine or it isn't related to her FPIES. So far all of her blood and skin tests have come back negative for any IgE allergies. I was curious what your experience was in this field. Thanks!
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Corrie
8/27/2015 03:21:37 pm
Hi Brittany,
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