So Evan's been on Budesonide for several months. A liquid inhaling steroid that he ingests, to help his esophagus heal. Origianlly the plan was to do a follow-up scope in December, but we still need to pay $500 of the $3,000 we had to pay out of pocket for the last scope, and decided to move the next one to March 2017. Overall his definitely had less reactions with his skin, and we've trialed some cauliflower and broccoli. He seems okay with caulifower, but refuses the broccoli and says it causes him stomach pain and nausea. So helpful that he is able to tell me this. Since being on budesonide twice daily, he's been more willing to eat some soft foods that are not pureed, and sometimes will even eat a slice of raw apple : )
I am the mom of two precious boys, who fill my days with much life and laughter.