In the last maybe 18 months, I've been able to find a lot of safe foods for Evan, and I just updated his safe list on this page and rearranged the list in alphabetical order, since it got much longer. In so doing, Evan and I were counting the total of his safe foods, and with much happiness realized that he is up to 40 safe foods (without including safe tea, spices, and herbs), evansfpies.weebly.com/evans-food-list--facts.html. That is SOOO amazing, especially since just a little over two years ago, when he was 5, he still only had 13 safe foods. This past year was full of firsts for Evan, it almost felt like a year of celebration (like his first barbecue, first safe pie, first hot cocoa - with camel milk and almond milk...). Part of it may be that he's been on oral budesonide for over two years now, and on half the dose since summer 2018, which has immensely helped reduce the inflammation in his esophagus. In addition to his FPIES, which was causing symptoms from birth on, he was diagnosed with EoE at age two. Of course life with FPIES and EoE still brings its challenges - https://evansfpies.weebly.com/life-w-fpies.html. My big hope is that Evan can get off EleCare completely by end of this year, which is costing us almost $5,000 out of pocket every year. He's been on that since 9 months old, 40 ounces per day for most of his life. Currently he is still taking 20-30 oz of EleCare per day, but last month, I was able to find some multivitamin and iron supplement that Evan is okay with. We pray every day that Evan can eat more different kinds of foods, and we thank everyone else who is praying, and thank the Lord with rejoicing over every new food he can have.
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About meI am the mom of two precious boys, who fill my days with much life and laughter. Archives
April 2021
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